Jon Hastie has Duchenne - a severe form of Muscular Dystrophy. Prognosis - paralysis, 24 hour ventilation and an early death. Time is precious. Time is not for wasting. Jon decides to travel around the UK and Holland visiting a number of amazing Duchenners who have carved out remarkable lives for themselves, despite this most crippling of disabilities. A Life Worth Living is no ordinary road movie. It's a fun, inspiring, poignant and surprising rock 'n roll journey that takes us into the lives of guys who, against all the odds, show us how valuable life is. The film bears witness to the fact that life is to be treasured and lived to the full.